For spoonies navigating medicine. Carers made invisible in the room. Healthcare professionals who went in to connect and ended up somewhere else. People who are somehow all three at once.
I was sick for ten years. Seven of them bedridden.
The medical system didn't know what to do with me. So it did what systems do with things they can't categorize: it made me invisible.
I became obsessed with that. Not bitterly — curiously. Why do people with something real to say go unheard? What actually happens in the gap between what someone feels and what they can say out loud in a room that has power over them?
I've spent fifteen years inside that question. Training 20,000 healthcare professionals. Teaching 15,000 people — most of them sick, exhausted, dismissed — how to speak when everything is working against them. Advising pharma companies. Speaking in 27 countries. Writing seven books. Being the first patient ever placed inside a medical research institute not as a subject but as a voice.
I still have ME/CFS. I still have POTS. I still know what it is to perform wellness you don't feel, in rooms that need you to be fine.
I work with spoonies who need to advocate for themselves. Carers who've become invisible in the room. Healthcare professionals who went into medicine to connect and ended up somewhere else. People who are somehow all three at once.
The work is always the same: find what the system made unsayable. Say it.
I run intensives in Vienna. I write at Chronically when I have something real to say. I teach when people are ready to learn.
I'm not performing recovery. I'm not selling transformation. I'm just doing the work, honestly, for people who need it.
Learn to speak when your body won't cooperate. For people with chronic illness, healthcare professionals, patient advocates, or anyone speaking from a place of vulnerability.
No services menu. No packages. These are the four things I do — each one approached honestly, in formats that don't drain either of us.
Essays about illness, voice, body, and the gap between what we feel and what we can say. Written when I have something real to say — not on a schedule, not for an algorithm.
Public speaking and storytelling intensive for people navigating chronic illness, caregiving, or healthcare work. Small group. Three days. In person. For people navigating chronic illness, caregiving, or healthcare — and the communication challenges that come with all three.
From 2026: individual sessions as a licensed LSB practitioner. Working specifically with people whose sense of self, story, and voice has been disrupted by illness or trauma.
Patient expert keynote speaker. Select keynotes per year. Only when the talk feels true. For healthcare organizations, patient advocacy summits, pharma, and conferences where the work actually matters.
If you're a healthcare organization or pharmaceutical company looking for patient perspective work or communication training — I do occasionally take on engagements. Only if approached, only for serious work. Write to me directly and we'll see if it makes sense.
Spanning chronic illness, patient rights, healthcare AI, and the body's hidden architecture. An eighth is in progress.
I give 2–4 keynotes a year. Not more. I only speak when the talk feels true and the room feels right. If you're looking for a speaker who will tell your audience what they want to hear, I'm the wrong person.
Essays about illness, voice, body narrative, and the gap between what we feel and what we can say. No content calendar. No algorithm. Just honest writing when there's something honest to say.
Read Chronically →No contact form. No discovery call booking system. No automated response. If something on this page felt true, write to me directly. I read everything.
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