I have POTS. I spent seven years in bed while doctors looked for a different answer. I found it myself. Now I write, speak, and build things — mostly for people the system still can't see.
I was sick for ten years. Seven of them bedridden.
The medical system didn't know what to do with me. So it did what systems do with things they can't categorize: it made me invisible.
I became obsessed with that. Not bitterly — curiously. Why do people with something real to say go unheard? What actually happens in the gap between what someone feels and what they can say out loud in a room that has power over them?
I've spent fifteen years inside that question. Training 20,000 healthcare professionals. Teaching 15,000 people — most of them sick, exhausted, dismissed — how to speak when everything is working against them. Advising pharma companies. Speaking in 27 countries. Writing seven books. Being the first patient ever placed inside a medical research institute not as a subject but as a voice.
I still have ME/CFS. I still have POTS. I still know what it is to perform wellness you don't feel, in rooms that need you to be fine.
I work with spoonies who need to advocate for themselves. Carers who've become invisible in the room. Healthcare professionals who went into medicine to connect and ended up somewhere else.
The work is always the same: find what the system made unsayable. Say it.
I run intensives in Vienna. I write at Chronically when I have something real to say. I teach when people are ready to learn.
Learn to speak when your body won't cooperate. For people with chronic illness, healthcare professionals, patient advocates, or anyone speaking from a place of vulnerability.
I only speak when the talk feels true and the room feels right. If you're looking for a speaker who will tell your audience what they want to hear, I'm the wrong person.
Spanning chronic illness, patient rights, healthcare AI, and the body's hidden architecture. An eighth is in progress.
Making the invisible visible through technology. Every product here is built by and for people the mainstream forgot to design for.
Essays about illness, voice, body narrative, and the gap between what we feel and what we can say. No content calendar. No algorithm. Just honest writing when there's something honest to say.
Read Chronically →No contact form. No discovery call booking system. No automated response. If something on this page felt true, write to me directly. I read everything.
hello@roishternin.com