25 May 2026·2 min readpersonalpresence
All about Inflammation with Dr. Natasha Punia
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Writing
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21 May 2026·2 min readpersonalpresence
The Mindful Migraine expert
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19 May 2026·2 min readchronic illnesspatient advocacy
Why disabled & chronically ill people are your best employees
19 May 2026 Why disabled & chronically ill people are your best employees I built eight organisations from my bed. Not despite being disabled. Thr
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18 May 2026·2 min readpersonalpresence
Redefining mental health with Vanessa Pott
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16 May 2026·5 min readai healthcarepatient advocacy
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15 May 2026·2 min readchronic illnesspatient advocacy
Mental health is the missing link in chronic illness
15 May 2026 Mental health is the missing link in chronic illness Here's a thing that happens to chronically ill people that nobody talks about clea
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14 May 2026·2 min readpersonalpresence
Falk Schuster on living with Major Depressive Disorder
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12 May 2026·2 min readchronic illnesspatient advocacy
What is patient experience data?
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11 May 2026·2 min readpersonalpresence
The Medical Anthropologist
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8 May 2026·2 min readchronic illnesspatient advocacy
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8 May 2026 We need more patient voices in MedTech MedTech is a strange world. Engineers build things. Investors fund them. Regulators approve them
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7 May 2026·2 min readpersonalpresence
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6 May 2026·2 min readpersonalpresence
Spooniversity went live yesterday. Here is what that feels like.
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5 May 2026·2 min readchronic illnesspatient advocacy
How public policy can change the mental health space
5 May 2026 How public policy can change the mental health space Policy is where good intentions go to become actionable, or where they go to die. T
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4 May 2026·2 min readpersonalpresence
The Complete Pocket Guide to Medical Appointments
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1 May 2026·4 min readmaking visiblepatient advocacy
Making the Invisible Visible
The manifesto behind everything. Where the framework came from, what it actually means, and the moment I understood that the illness wasn't being treated because it hadn't been made speakable yet.
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1 May 2026·4 min readchronic illnessinvisible illness
What It Actually Costs
The invisible energy tax of every action — not just the physical cost, but the social, professional, and emotional cost of living within severe limits.
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1 May 2026·4 min readpatient advocacyinvisible illness
What the 33 Doctors Missed
Not negligence. Structural failure. What actually happens inside the diagnostic process when a patient's symptoms don't fit the expected pattern.
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1 May 2026·2 min readchronic illnesspatient advocacy
Patient voices in Digital Health products
1 May 2026 Patient voices in Digital Health products There's a pattern in digital health that I've watched repeat itself for a decade. A company b
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30 April 2026·2 min readpersonalpresence
The ABC of Public Speaking
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28 April 2026·2 min readchronic illnesspatient advocacy
The skills nobody taught me to name
28 April 2026 The skills nobody taught me to name I want to name something that chronically ill people do every day and never put on a CV. You man
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27 April 2026·2 min readpersonalpresence
The Little Book of Patient Communication
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24 April 2026·2 min readchronic illnesspatient advocacy
Machines handle information. Humans handle transformation.
24 April 2026 Machines handle information. Humans handle transformation. It took me almost a decade to get diagnosed. It took ChatGPT ten seconds.
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23 April 2026·2 min readpersonalpresence
The Algorithm Will See You Now
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21 April 2026·2 min readchronic illnesspatient advocacy
From medic to patient
21 April 2026 From medic to patient For nine years, I ran toward emergencies. Israeli Red Cross, 1998 to 2006. Eight years of showing up when ever
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20 April 2026·2 min readpersonalpresence
What Do Patients Want?
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17 April 2026·2 min readchronic illnesspatient advocacy
Patient engagement is not empowerment
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16 April 2026·2 min readpersonalpresence
Revolution From My Bed
← back to blog memoirchronic-illnessworkidentityconstraint-based-thinking Revolution From My Bed Thursday, 16 April 2026 Seven years in bed. T
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14 April 2026·2 min readchronic illnesspatient advocacy
The spoonie tax
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13 April 2026·2 min readpersonalpresence
Good days are dangerous
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10 April 2026·2 min readpersonalpresence
I'm Launching One Track Early. Here's Why I'm Uneasy About It.
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10 April 2026·2 min readchronic illnesspatient advocacy
Women in healthcare deserve better
10 April 2026 Women in healthcare deserve better When a woman enters a doctor's office, she hopes to be seen as a human being. She is rarely seen
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9 April 2026·2 min readpersonalpresence
The isolated island of illness
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7 April 2026·2 min readchronic illnesspatient advocacy
Buy a nice mattress and grow old with dignity
7 April 2026 Buy a nice mattress and grow old with dignity A doctor told me to buy a nice mattress and grow old with dignity. I was 25. He wasn't
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6 April 2026·2 min readpersonalpresence
7 lessons I learned from 7 years in bed
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5 April 2026·2 min readchronic illnesspatient advocacy
Spooniversity is open.
5 April 2026 Spooniversity is open. There is a specific kind of grief that comes from watching your career dissolve while you're too sick to stop i
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3 April 2026·2 min readchronic illnesspatient advocacy
Thirty-three doctors
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2 April 2026·2 min readpersonalpresence
Just get up.
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1 April 2026·4 min readpatient advocacyconstraint
Building Spoons.world: What We're Learning
The real challenges of building a patient-side community platform — what you discover when you try to build infrastructure for people too exhausted to use bad tools.
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1 April 2026·4 min readchronic illnesspatient advocacy
Chronically: Where the Honesty Lives
Why Chronically exists — and what 'honest writing about chronic illness' means when most illness media is built around uplift and resolution.
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1 April 2026·4 min readchronic illnessconstraint
Good Days Are Dangerous
The worst crashes come after the best days. Why feeling good is a trap for people with chronic illness — and what the world gets wrong about recovery.
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1 April 2026·4 min readconstraintchronic illness
The Loneliness Nobody Mentions and the Freedom Nobody Warns You About
Working alone with chronic illness is both harder and better than anyone said. The loneliness is real. The freedom is real. Both things, simultaneously, all the time.
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1 April 2026·5 min readchronic illnessconstraint
7 Lessons I Learned from 7 Years in Bed
Not advice. Not inspiration. Seven things that became clear when everything else was stripped away — most of them arrived against my will.
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1 April 2026·4 min readconstraintmaking visible
Shipping into the Void
The specific terror of building something real, making it public, and watching the users not arrive. On what you do in the silence after you ship.
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1 April 2026·4 min readchronic illnessconstraint
The Exoskeleton
Getting an exoskeleton changes the physical fact of movement. It doesn't change what it means to have needed one. On the gap between what technology promises and what it delivers.
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1 April 2026·4 min readmaking visiblepatient advocacy
The Metrics We Don't Have
Someone told me my book helped them while bedbound. I had no way to measure it. On the gap between the impact that gets tracked and the impact that actually matters.
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1 April 2026·4 min readconstraintmaking visible
What Do You Do?
On the impossibility of fitting a multi-dimensional life into a one-word answer — and what happens when you stop trying.
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1 April 2026·4 min readchronic illnessinvisible illness
Why Does Everything I Love Try to Kill Me Now
On MCAS, food intolerances, the expanding list of things that cause reactions — and the real grief underneath the semi-serious rant.
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29 March 2026·2 min readchronic illnesspatient advocacy
Can AI restore humanity in healthcare?
29 March 2026 Can AI restore humanity in healthcare? Ten years. That's how long it took doctors to find my diagnosis. Ten seconds. That's how long
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27 March 2026·2 min readpersonalpresence
A 5090 Won't Fix This
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27 March 2026·2 min readpersonalpresence
Building Spoons.world: What We're Learning
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27 March 2026·2 min readpersonalpresence
The Metrics We Don't Have
← back to blog The Metrics We Don't Have Friday, 27 March 2026 Someone reached out recently. They said "Revolution from My Bed" helped them wh
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25 March 2026·2 min readpersonalpresence
What Do You Do?
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24 March 2026·2 min readpersonalpresence
The Exoskeleton
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23 March 2026·2 min readpersonalpresence
Chronically: Where the Honesty Lives
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22 March 2026·2 min readpersonalpresence
My $350 mini PC beats your $2000 gaming rig and also harms the planet less
← back to blog techgamingsustainabilitymini-pc My $350 mini PC beats your $2000 gaming rig and also harms the planet less Sunday, 22 March 2026
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21 March 2026·2 min readpersonalpresence
Shipping into the void
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19 March 2026·2 min readpersonalpresence
I replaced a £600 Apple Watch with a $26 Pine64 and I am fine
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17 March 2026·2 min readpersonalpresence
The loneliness nobody mentions and the freedom nobody warns you about
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14 March 2026·2 min readpersonalpresence
Why does everything I love try to kill me now
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10 March 2026·2 min readpersonalpresence
How getting smaller saved my digital life
← back to blog techdigital-hygienetools How getting smaller saved my digital life Tuesday, 10 March 2026 I used to have a setup that looked im
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4 March 2026·4 min readperformance culturechronic illness
The Illusion of Performance
On performing wellness for so long that the performance rearranges the furniture in your head. What the body reports when the narrative isn't the true one.
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22 September 2025·2 min readchronic illnesspatient advocacy
The Entrepreneurial Body Keeps the Score: What Building a Business with Chronic Illness Really Looks Like
22 September 2025 The Entrepreneurial Body Keeps the Score: What Building a Business with Chronic Illness Really Looks Like There's a moment every
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8 September 2025·1 min readchronic illnesspatient advocacy
The Story That Changed My Life (And Can Change Yours)
8 September 2025 The Story That Changed My Life (And Can Change Yours) Hey everyone, For years, I've used this space to share my journey, but more
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3 September 2025·1 min readchronic illnesspatient advocacy
Revolutionizing Medical Education: The Empathy Imperative
3 September 2025 Revolutionizing Medical Education: The Empathy Imperative Why Five Days Changed Everything for Future Doctors Picture this: A firs
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19 April 2025·1 min readchronic illnesspatient advocacy
Do You Really Want to Get Better?
19 April 2025 Do You Really Want to Get Better? The Hidden Comfort of Chronic Illness There's a question that haunts the corridors of chronic suffer
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21 March 2025·1 min readchronic illnesspatient advocacy
Invisible Illness, Visible Resilience
21 March 2025 Invisible Illness, Visible Resilience Last night, during a yoga class meant to be inclusive, I found myself reliving years of medical
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21 March 2025·1 min readchronic illnesspatient advocacy
The Rise of Patient Influencers
21 March 2025 The Rise of Patient Influencers Shaping the Future of Healthcare A new force is emerging in healthcare: patient influencers. These in
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20 March 2025·2 min readchronic illnesspatient advocacy
The Silent Choreography of Pain
20 March 2025 The Silent Choreography of Pain Or why we mask our suffering to fit in Life is a theater and we become performers without choosing th
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8 February 2025·2 min readchronic illnesspatient advocacy
The Daily Price of Patient Advocacy
8 February 2025 The Daily Price of Patient Advocacy Dancing with My Demons to Help Others Find Their Way Every morning, I open my laptop and willing
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2 February 2025·2 min readchronic illnesspatient advocacy
Breaking Free from Social Media's Success Theater
2 February 2025 Breaking Free from Social Media's Success Theater You know what? I've been thinking a lot lately about this crazy race we're all su
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11 January 2025·2 min readchronic illnesspatient advocacy
Parenting Through the Fog
11 January 2025 Parenting Through the Fog A Chronicle of Love and Chronic Illness My newborn daughter's cries pierce through the familiar haze of p
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13 December 2024·2 min readchronic illnesspatient advocacy
Finally home again ✈️🎤
13 December 2024 Finally home again ✈️🎤 A quick life & Work update Hey Friends! 🎤 Time for a real "working on" update, because you asked (and I l
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7 December 2024·1 min readchronic illnesspatient advocacy
You asked for it, I deliverd
7 December 2024 You asked for it, I deliverd A new Master Class in Public speaking Iv’e been getting a lot of emails, DM’s and shoutouts asking me t
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5 December 2024·1 min readchronic illnesspatient advocacy
An Exciting Update & A Special Offer
5 December 2024 An Exciting Update & A Special Offer Here's to another incredible year! I've been fortunate enough to speak in 12 new countries, fi
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27 October 2024·2 min readchronic illnesspatient advocacy
Back to Life
27 October 2024 Back to Life My Journey from Bedridden to Walking Again My path to recovery began not with confident strides, but with rubber bands
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11 October 2024·2 min readchronic illnesspatient advocacy
Breaking Free
11 October 2024 Breaking Free A Raw Take on World Mental Health Day Yesterday was World Mental Health Day, and we're about to rip off the Band-Aid
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5 October 2024·2 min readchronic illnesspatient advocacy
Where Do I Begin?
5 October 2024 Where Do I Begin? A Crossroads of Choices The journey to wellness often begins with a dizzying array of options, each promising a pa
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18 September 2024·2 min readchronic illnesspatient advocacy
Your next speaker should be a patient.
18 September 2024 Your next speaker should be a patient. Business leaders constantly seek fresh perspectives and insights to share with our teams a
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1 June 2024·2 min readchronic illnesspatient advocacy
From Victimhood to Responsibility Taking
1 June 2024 From Victimhood to Responsibility Taking Or how did I escape the victim trap. The day my life collapsed, I had a choice. I could contin
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18 May 2024·1 min readchronic illnesspatient advocacy
Managing Energy with Chronic Illness
18 May 2024 Managing Energy with Chronic Illness Hey! people tend to take for granted to be able to manage a full day of activity while millions of
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15 May 2024·2 min readchronic illnesspatient advocacy
It's all in your Chest?
15 May 2024 It's all in your Chest? (It's Not All in Your Head!) Hey everyone, We've all experienced tension, and for many of us, it seems to sett
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11 May 2024·1 min readchronic illnesspatient advocacy
Revolution From My bed?
11 May 2024 Revolution From My bed? The Way Out A raw and honest account of one man's journey through chronic illness, trauma, and the search for t
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7 May 2024·2 min readchronic illnesspatient advocacy
So we begin
7 May 2024 So we begin And the body has it's say So, for those of you who don't know me, I'm Roi. I was born and raised in Israel. I have been offi
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7 May 2024·1 min readchronic illnesspatient advocacy
Where to start?
7 May 2024 Where to start? The Way Out A raw and honest account of one man's journey through chronic illness, trauma, and the search for true heali
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5 May 2024·1 min readchronic illnesspatient advocacy
Sick of my Sickness.
5 May 2024 Sick of my Sickness. Hey, I’m Roi and I will use this podcast to help me expand on the my healing journey experiences. Lets start by un
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3 May 2024·1 min readchronic illnesspatient advocacy
The Healing Power of Empathy in Medicine
3 May 2024 The Healing Power of Empathy in Medicine Chronically The Patient Empowerment Newsletter Empathy is a profound human experience that co
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3 May 2024·1 min readchronic illnesspatient advocacy
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1 May 2024·2 min readchronic illnesspatient advocacy
The Way Out
1 May 2024 The Way Out A Chronicle of Relapse and Redemption It's a harsh realization: you pull through life with chronic illness, trying to surviv
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1 May 2024·2 min readchronic illnesspatient advocacy
The Way Out
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26 April 2024·2 min readchronic illnesspatient advocacy
Health IT is broken, Let's fix it.
26 April 2024 Health IT is broken, Let's fix it. Chronically The Patient Empowerment Newsletter Let's face it, the current state of healthcare IT
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19 April 2024·1 min readchronic illnesspatient advocacy
A Tapestry of Strength: Fostering Collaboration in Patient Advocacy
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12 April 2024·2 min readchronic illnesspatient advocacy
Every Chronic Illness Has a Mental Health Component
12 April 2024 Every Chronic Illness Has a Mental Health Component Chronically The Patient Empowerment Newsletter When we talk about chronic illne
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5 April 2024·2 min readchronic illnesspatient advocacy
Case managers: The missing link of Healthcare
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29 March 2024·1 min readchronic illnesspatient advocacy
Invisible Champions: Why Supporting Caregivers Strengthens Us All
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22 March 2024·2 min readchronic illnesspatient advocacy
Lost in the Labyrinth: Why Health Literacy is the Key to Patient Empowerment
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15 March 2024·2 min readchronic illnesspatient advocacy
The Duality of Illness: Embracing the Journey While Demanding Recognition
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8 March 2024·2 min readchronic illnesspatient advocacy
The Bias Silencing Women in Healthcare
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1 March 2024·1 min readchronic illnesspatient advocacy
Rare Beyond Diagnosis: A Different Perspective on Rare Disease Day
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23 February 2024·2 min readchronic illnesspatient advocacy
The Forgotten Price of Chronic Illness: A Systemic Approach to Reclaiming Wellness
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16 February 2024·2 min readchronic illnesspatient advocacy
Beyond the Buzzword: Why Patients Should Be the Pulse of Healthcare Innovation
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9 February 2024·1 min readchronic illnesspatient advocacy
Reclaiming Empathy in Healthcare
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2 February 2024·2 min readchronic illnesspatient advocacy
How “Illness Porn” Changed Chronic Illness Forever
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26 January 2024·2 min readchronic illnesspatient advocacy
The Invisible Burden of Chronic Illness Loneliness
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26 January 2024·1 min readchronic illnesspatient advocacy
The Patient loneliness epidemic
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19 January 2024·2 min readchronic illnesspatient advocacy
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12 January 2024·1 min readchronic illnesspatient advocacy
The Coming Healthcare Revolution
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5 January 2024·2 min readchronic illnesspatient advocacy
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29 December 2023·1 min readchronic illnesspatient advocacy
Patient Empowerment: A Year in Review and a Call to Action
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22 December 2023·1 min readchronic illnesspatient advocacy
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15 December 2023·2 min readchronic illnesspatient advocacy
We are not clients.
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8 December 2023·1 min readchronic illnesspatient advocacy
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24 November 2023·2 min readchronic illnesspatient advocacy
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17 November 2023·2 min readchronic illnesspatient advocacy
Chronically Ignored
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10 November 2023·1 min readchronic illnesspatient advocacy
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3 November 2023·1 min readchronic illnesspatient advocacy
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27 October 2023·2 min readchronic illnesspatient advocacy
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20 October 2023·2 min readchronic illnesspatient advocacy
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6 October 2023·1 min readchronic illnesspatient advocacy
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22 September 2023·2 min readchronic illnesspatient advocacy
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15 September 2023·1 min readchronic illnesspatient advocacy
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8 September 2023·1 min readchronic illnesspatient advocacy
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1 September 2023·2 min readchronic illnesspatient advocacy
It's Time to Lift the Taboo Off Mental Health
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25 August 2023·2 min readchronic illnesspatient advocacy
Is it Our Job to State Our Disabilities?
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18 August 2023·1 min readchronic illnesspatient advocacy
Patients are experts too.
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28 July 2023·1 min readchronic illnesspatient advocacy
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21 July 2023·1 min readchronic illnesspatient advocacy
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14 July 2023·1 min readchronic illnesspatient advocacy
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7 July 2023·2 min readchronic illnesspatient advocacy
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30 June 2023·2 min readchronic illnesspatient advocacy
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23 June 2023·1 min readchronic illnesspatient advocacy
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16 June 2023·1 min readchronic illnesspatient advocacy
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9 June 2023·2 min readchronic illnesspatient advocacy
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2 June 2023·1 min readchronic illnesspatient advocacy
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26 May 2023·1 min readchronic illnesspatient advocacy
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19 May 2023·1 min readchronic illnesspatient advocacy
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28 April 2023·1 min readchronic illnesspatient advocacy
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21 April 2023·2 min readchronic illnesspatient advocacy
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14 April 2023·2 min readchronic illnesspatient advocacy
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10 April 2023·2 min readchronic illnesspatient advocacy
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9 April 2023·2 min readchronic illnesspatient advocacy
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15 June 2021·2 min readchronic illnesspatient advocacy
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12 December 2019·2 min readchronic illnesspatient advocacy
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31 March 2016·1 min readchronic illnesspatient advocacy
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