Trapped by Kindness: How Social Security Schemes Fail the Chronically Ill

Social security systems, designed as a safety net, are often inadvertently transforming into a cage for people living with chronic illnesses. The very systems meant to support us are, often, actively hindering our ability to live full, productive, and normal lives. The core issue? The rigid, often archaic structure of these systems, which frequently penalizes work and inadvertently traps us in a cycle of illness and disability.

Harnessing the Power of Patient Experience Data, Patient-Reported Outcomes, and Patient Empowerment in Chronic Illness Management

In the realm of chronic illness management, three concepts stand out as significant game-changers: Patient Experience Data (PED), Patient-Reported Outcomes (PROs), and Patient Empowerment. Each concept represents a significant shift towards a more patient-centered healthcare model, emphasizing the role of the patient as an active participant in their care. This week, in our "Chronically Empowered" newsletter, we're diving deep into these concepts, analyzing their roles, and exploring how they intersect to reshape chronic illness management.

Empowerment, Resilience, and Advocacy: Transforming Patient Experiences Worldwide

Sharing my idea of patient academies aimed at fostering patient education and empowerment was particularly thrilling. I am deeply grateful to my fellow patient leaders, advocates, experts, and the dedicated members of Boehringer Ingelheim for their efforts to turn this summit into a reality.

The Elephant in the Corporate Room: It's Time to Talk About Chronic Illness

Let's be real for a second. Trying to bring the patient experience into the success-based world of LinkedIn In is not an easy task. The algorithm will always prefer a group photo from a professional gathering, a multi-tagging kudos, back-rubbing inter-company post, or simply an image of beautiful, young, and successful people.

The Isolated Archipelago of Illness

When chronic illness strikes, patients often find themselves lost at sea, cast away on isolated islands of pain and debilitation. Diagnoses may at first appear like uniform atolls, but up close, each illness reveals itself as a unique landmass requiring specialized navigation.

Uplifting the Human Side of Healthcare

Patients increasingly fall head over heels for the personalized care PAs and NPs provide. Their extensive medical knowledge plus a genuine patient-centric approach has proven they are not just supporting players, but integral members of the healthcare team.