It's About Time: Recognizing Invisible Illnesses as Disabilities

Imagine waking up every day feeling as if you've been hit by a truck. Your body aches, your head pounds, and even the simplest tasks feel impossibly difficult. This is the reality for millions of people suffering from invisible chronic illnesses like Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Long COVID, and Fibromyalgia.

Putting Patients First: The Power of Patient Experience Data

As healthcare providers, policymakers, and patient advocates, we are always looking for ways to improve the quality of care and ensure that the needs of patients are being met. One powerful tool that is often overlooked is patient experience data - the invaluable information we can collect directly from the people receiving healthcare services.

Unmet Needs in Mental Healthcare: The GMHCS24 Summit Tackles a Critical Issue

Mental health conditions are a global challenge, affecting millions of people worldwide. While significant progress has been made in treatment options, a concerning gap remains between available services and the full spectrum of needs faced by patients. This disparity often goes unnoticed, leaving individuals struggling with crucial aspects of daily life.

The Sheer and Utter Loneliness of Living with a Chronic Illness

Living with a chronic illness is like being trapped in a glass box in the middle of a crowded room. You can see everyone living their lives, going about their daily routines, but you're separated by an invisible barrier that few can understand or penetrate. I've spent years watching the world through this glass, and let me tell you - it's a unique kind of loneliness that eats at your soul.

How Healthcare Influencers Are Rewriting the Medical Narrative

There are three fundamental reasons why patient influencers are revolutionizing healthcare delivery and communication. This transformation represents a decisive shift in how medical knowledge flows, and its impact is reshaping the entire healthcare landscape.

The Spoon Theory: A New Way to Embrace Your Limited Energy

We chronic illness warriors are all too familiar with that bone-deep exhaustion that screams "I'm done" before the day has even started. When merely showering feels like running a marathon, how can we possibly keep up with work, relationships, and the rest of life's demands? Enter: The Spoon Theory.