The notes

Essays on what most people walk past, and the notes: short, true, a bit rude about the system and a lot kinder about the people in it. Chapters of the memoir appear here first.

This archive spans 2016–2026. The work I'm most proud of starts around 2025. Everything before it is where I was figuring out what I was trying to say.

18 August 2026·5 min readai healthcarekeynote speaking

What Happens to the Doctor-Patient Relationship When Both of You Have Already Asked the AI

A keynote angle for health systems and pharma events: what changes in the exam room once patients and clinicians both consult AI before the appointment, and what that means for trust.

31 July 2026·3 min readPersonalPresence

My medical record lives on a GB10 now

Every doctor I've ever seen keeps a piece of me. The lab company has my bloodwork. The hospital has my discharge notes. The specialist has the scan. The…

25 May 2026·1 min readpodcastPresence

All about Inflammation with Dr. Natasha Punia

Inflammation is everywhere in chronic illness conversations. "Your body is attacking itself." "The inflammation is the problem." "We need to reduce…

21 May 2026·2 min readpodcastPresence

The Mindful Migraine expert

There's a specific kind of clarity that comes from living with migraines for decades. Not the clarity of "I've figured out how to cure this." The clarity…

18 May 2026·1 min readpodcastPresence

Redefining mental health with Vanessa Pott

Mental health isn't the absence of mental illness. It's also not the presence of happiness, or resilience, or any of the other words we use to describe…

16 May 2026·5 min readai healthcarePatient Advocacy

How I Used a Local AI to Help My Mother

My mother has cancer. I used a local AI model to read her oncology records in Hebrew, cross-reference treatment protocols, and ask the questions her doctors didn't have time for.

14 May 2026·2 min readpodcastPresence

Falk Schuster on living with Major Depressive Disorder

There's a difference between knowing about depression and knowing depression. Falk Schuster knows depression. Not as a concept. As a morning that doesn't…

11 May 2026·2 min readpodcastPresence

The Medical Anthropologist

There's a specific kind of clarity that comes from studying medicine from the outside. Dr. Margret Jaeger is a medical anthropologist, which means she…

7 May 2026·1 min readpodcastPresence

Samah Atout on war and mental health

There's a moment in every conversation where you realise the person across from you has lived something you haven't. Not just experienced it, survived it…

6 May 2026·2 min readPersonalPresence

Spooniversity went live yesterday. Here is what that feels like.

Yesterday, Spooniversity went live. Not with fanfare. Not with a countdown. Not with a launch post that performs excitement for an audience. I sent some…

4 May 2026·2 min readPersonalPresence

The Complete Pocket Guide to Medical Appointments

Medical appointments are where patients lose their voice. You walk in with questions. The doctor has ten minutes. You walk out confused. Or you don't get…

1 May 2026·4 min readmaking visiblePatient Advocacy

Making the Invisible Visible

The manifesto behind everything. Where the framework came from, what it actually means, and the moment I understood that the illness wasn't being treated because it hadn't been made speakable yet.

1 May 2026·4 min readChronic Illnessinvisible illness

What It Actually Costs

The invisible energy tax of every action: the social, professional, and emotional cost of living within severe limits, not only the physical one.

1 May 2026·4 min readPatient Advocacyinvisible illness

What the 33 Doctors Missed

Not negligence. Structural failure. What actually happens inside the diagnostic process when a patient's symptoms don't fit the expected pattern.

30 April 2026·2 min readPersonalPresence

The ABC of Public Speaking

I couldn't speak for years. Not that I lost the ability. But after seven years in bed, after months of not talking to anyone, after the dysautonomia made…

27 April 2026·2 min readPersonalPresence

The Little Book of Patient Communications

Healthcare is drowning in communication training that doesn't work. Clinicians learn scripts. Patients learn how to advocate. And then they sit in a room…

23 April 2026·2 min readPersonalPresence

The Algorithm Will See You Now

AI is coming to healthcare. It's already here. And we're asking all the wrong questions about whether it should be. The questions aren't "can AI diagnose…

20 April 2026·2 min readPersonalPresence

What Do Patients Want?

Healthcare runs focus groups. Surveys. Patient advisory boards. And then it builds systems that ignore everything patients actually told them. This book…

16 April 2026·2 min readPersonalPresence

Revolution From My Bed

Seven years in bed. Then another seven learning how to think differently. This book exists because something shifted. Not in my body, that's still…

10 April 2026·2 min readPersonalPresence

I'm Launching One Track Early. Here's Why I'm Uneasy About It.

I wasn't planning to do this yet. The plan was to build the whole thing properly. All the tracks, the community infrastructure, the onboarding flow that…

9 April 2026·2 min readPersonalPresence

The isolated island of illness

When chronic illness strikes, you find yourself on an island. Not a tropical one. Not a quiet retreat. An island with no boats, no bridges, no signal. The…

2 April 2026·2 min readPersonalPresence

Just get up.

"Just get up." That's what the doctors kept saying. As though the problem was motivation. As though my legs had simply forgotten they had a job and needed…

1 April 2026·4 min readChronic IllnessPatient Advocacy

Chronically: Where the Honesty Lives

Why Chronically exists, and what 'honest writing about chronic illness' means when most illness media is built around uplift and resolution.

1 April 2026·4 min readChronic Illnessconstraint

Good Days Are Dangerous

The worst crashes come after the best days. Why feeling good is a trap for people with chronic illness, and what the world gets wrong about recovery.

1 April 2026·4 min readconstraintChronic Illness

The Loneliness Nobody Mentions and the Freedom Nobody Warns You About

Working alone with chronic illness is both harder and better than anyone said. The loneliness is real. The freedom is real. Both things, simultaneously, all the time.

1 April 2026·5 min readChronic Illnessconstraint

7 Lessons I Learned from 7 Years in Bed

Not advice. Not inspiration. Seven things that became clear when everything else was stripped away, most of them arrived against my will.

1 April 2026·4 min readconstraintmaking visible

Shipping into the Void

The specific terror of building something real, making it public, and watching the users not arrive. On what you do in the silence after you ship.

1 April 2026·4 min readChronic Illnessconstraint

The Exoskeleton

Getting an exoskeleton changes the physical fact of movement. It doesn't change what it means to have needed one. On the gap between what technology promises and what it delivers.

1 April 2026·4 min readmaking visiblePatient Advocacy

The Metrics We Don't Have

Someone told me my book helped them while bedbound. I had no way to measure it. On the gap between the impact that gets tracked and the impact that actually matters.

1 April 2026·4 min readconstraintmaking visible

What Do You Do?

On the impossibility of fitting a multi-dimensional life into a one-word answer, and what happens when you stop trying.

1 April 2026·4 min readChronic Illnessinvisible illness

Why Does Everything I Love Try to Kill Me Now

On MCAS, food intolerances, the expanding list of things that cause reactions, and the real grief underneath the semi-serious rant.

27 March 2026·2 min readPersonalPresence

A 5090 Won't Fix This

I've been chasing specs. For years. Better GPU. Better CPU. More RAM. Faster storage. The next upgrade, the next generation, the next big leap in…

22 March 2026·2 min readPersonalPresence

My $350 mini PC beats your $2000 gaming rig and also harms the planet less

I know two people who built dedicated gaming setups that cost upwards of two thousand euros. Both of them primarily play DOTA. DOTA. The game from 2013…

19 March 2026·2 min readPersonalPresence

I replaced a £600 Apple Watch with a $26 Pine64 and I am fine

The Apple Watch Ultra is genuinely impressive. It has an altimeter. A siren that can be heard from 600 feet. Dive modes. A titanium case. Battery that…

10 March 2026·2 min readPersonalPresence

How getting smaller saved my digital life

I used to have a setup that looked impressive on paper. A full gaming rig with a tower the size of a small child. A monitor that could probably be seen…

4 March 2026·4 min readperformance cultureChronic Illness

The Illusion of Performance

On performing wellness for so long that the performance rearranges the furniture in your head. What the body reports when the narrative isn't the true one.

A note every two weeks.

One email a fortnight. Leave whenever you like.

Revolution From Your Bed

Longer conversations recorded from the in-between. No schedule. When there's something worth recording, it gets recorded.

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