Is it Our Job to State Our Disabilities?

25 August 2023 Is it Our Job to State Our Disabilities? Chronically The Patient Empowerment Newsletter Imagine everyone had a backpack on their b

25 August 2023 Is it Our Job to State Our Disabilities? Chronically The Patient Empowerment Newsletter

Imagine everyone had a backpack on their back. Some carry a kilo, some 5, some 10. How can you tell?

This is what life is like with an invisible illness.

I have a chronic illness that affects my energy levels and ability to focus. On a good day, I can go about my day like anyone else. But on a bad day, I can barely get out of bed.

The problem is, there's no way to tell from looking at me how I'm feeling. I could be having a great day or a terrible day, and you wouldn't be able to tell the difference.

This can be frustrating for me because I often need help or support from others. But I'm hesitant to ask for it because I don't want to be seen as weak or lazy.

I also worry that if I tell people about my illness, they'll treat me differently. They might think I'm not capable of doing things, or they might pity me.

So, what's a person with an invisible illness to do? Do we have to state our disabilities on every occasion we might need help, support, or more patience? Or is it society's role to be more understanding and accommodating?

I think the answer is both.

It's important for people with invisible illnesses to be open about their conditions. This helps to raise awareness and understanding. It also allows us to get the support we need.

But it's also important for society to be more understanding and accommodating. We need to create a world where people with invisible illnesses don't have to feel like they have to hide their conditions.

Here are a few things we can do to make the world more inclusive for people with invisible illnesses:

Be patient and understanding. Don't judge someone based on their appearance.

Be willing to offer help. If someone asks for help, don't question them. Just offer your support.

Be open to learning about invisible illnesses. There are many resources available to help you learn more.

Advocate for change. Talk to your ele