← All Chronically posts
15 September 2023· 1 min readChronically

It's Time to Acknowledge Invisible Illness and Disability

I see the judging look every time I ask for help on a train or in an airport, because I don't look disabled. Society isn't trained to extend compassion to something it can't see.

Roi Shternin

I see the same look every time I ask for assistance on a train, in an airport, at work, or anywhere else that requires explaining an invisible condition: a flicker of doubt, because I don't look sick.

Society isn't trained to extend compassion to something it can't see, and that failure lands hardest on people whose disability doesn't come with a visible marker. Looking "normal" gets read as being normal, as if illness were required to announce itself physically to count.

That produces a specific kind of discrimination: constant suspicion, constant demand for proof that a visibly disabled person is never asked to produce. "You don't look sick, what's your excuse?" is a sentence most people with an invisible condition have heard some version of.

In medical settings this becomes gaslighting directly: symptoms doubted, dismissed, attributed to something else, which delays the treatment and accommodation that were needed from the start. Meanwhile the actual symptoms, pain, fatigue, dizziness, brain fog, don't become less real just because nobody can see them from across a waiting room.

What changes this isn't more explaining from the people already exhausted by having to explain. It's believing people about their own bodies as the default, and asking "how can I support you" instead of "prove you need it." Disabilities come in every shape, most of them invisible. That doesn't make them less real, and it doesn't make the person carrying one owe you evidence before they're treated with basic dignity.

More Chronically essays and episodes

Honest writing on chronic illness, patient advocacy, and showing up.

Browse Chronically →

← Previous

It's Time for a Chief Patient Officer in Every Healthcare Organization

Next →

Unlocking the Superpowers of Necessity: Why Chronically Ill and Disabled People May Be Our Best Employees