Spooniversity went live yesterday. Here is what that feels like.
← back to blog spooniversitychronic-illnesspatient-educationbuildingconstraint-based-thinkinglaunch Spooniversity went live yesterday. Here is wh
← back to blog spooniversitychronic-illnesspatient-educationbuildingconstraint-based-thinkinglaunch Spooniversity went live yesterday. Here is what that feels like. Wednesday, 6 May 2026 Yesterday, Spooniversity went live.
Not with fanfare. Not with a countdown. Not with a launch post that performs excitement for an audience. I sent some messages. The platform opened. A small group of people who had signed up early got in.
That was it.
I have been building this for longer than I want to admit. Not because the technical work took that long — the stack is solid, the courses exist, the infrastructure for variable capacity is genuinely good. But because there is a specific weight in building something for people who have been failed by healthcare systems, and then asking them to trust you with their spoons.
Chronically ill patients have been sold things before. Supplements. Miracle protocols. "Clinically proven" and "studies show" and "designed by experts" — all of it aimed at people who would try anything because they are out of options. The betrayal of that is real. The scar tissue is real.
I did not want to add to it.
So I kept asking myself: is this ready enough? Not perfect. Ready enough. Honest enough. Safe enough to hand to someone on a bad body day and say — this will not waste your spoons.
I do not know that I have fully answered that question. I am not sure you can answer it fully before you start.
What I know: two pathways are live.
Bedvocates — body literacy and healthcare advocacy. Five courses for people who want to understand what is actually happening inside them and how to talk to doctors about it. Not pamphlets. Not passive information transfer. Curriculum by people who have navigated the system from the patient side.
BedOps — operations and management in healthcare. Six courses for clinicians, advocates, and people building things while living with their own constraints.
Short lessons. No streaks. No deadlines. Crash Day Mode — becau
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