Issue 3: Revolutionizing Healthcare through Empathy, Innovation, and Patient Involvement
On medical gaslighting, a line from my own book, and what wearables actually change about patient outcomes.
Medical gaslighting and the empathy it costs
A New York Times piece on medical gaslighting is worth your time: read it here. It describes what happens when a provider dismisses a patient's symptoms until the patient starts doubting their own perception of their own body.
I wrote about the same thing in *Revolution from My Bed*:
> "We didn't wake up deciding to be rebellious, sick, or uncooperative in our healing, and they didn't choose to be unkind."
Neither side chose the dynamic. That doesn't make it harmless.
What wearables actually change
Digital Health Wire covered how wearables are starting to measure patient outcomes directly, not just vital signs. Tracked well, that data gives patients a way to see their own patterns and gives clinicians something better than a self-report from memory. The interesting shift isn't the device. It's who gets to see the data first.
Patients on stage, not just in the room
Conferences that put patients up as speakers, not just as the subject of the talk, get a different conversation. It's a small structural choice with a large effect on what a room is willing to hear.
More Chronically essays and episodes
Honest writing on chronic illness, patient advocacy, and showing up.