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19 May 2023· 1 min readChronically

Paternalism to Empowerment

Medicine used to happen to patients. It's supposed to happen with them now. A hospital in Vienna reminded me how far that shift still has to go.

Roi Shternin

Healthcare used to run entirely on the doctor's judgment, with the patient's own read on their situation treated as background noise. The shift toward patient-centered care means things are supposed to happen *with* patients now, not *to* them. Outcomes improve when they do. This isn't about taking authority away from doctors. It's about recognizing that the patient is also an expert, on the one subject no clinician can study from outside: their own body.

That shift is still mostly aspirational, and I have a recent, specific reason to say so.

At a major hospital in Vienna, a doctor implied I was a burden because of my chronic illness. Then, after a blood draw, I was left intentionally bleeding, an "educational" measure, in the doctor's own words. There is no lesson taught by causing a patient deliberate harm. It was unprofessional, and it was worse than that.

Medical gaslighting, dismissing or minimizing a patient's own account of their symptoms, is not a rare glitch. It's a routine failure mode for patients with chronic illness, who get filed as difficult before anyone has actually listened. The New York Times has covered this pattern well.

Every patient's pain deserves to be taken at face value until proven otherwise, not the reverse. That's the whole shift, still unfinished.

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